Who am I?
Hi, I’m Rebecca and I’m first time Mummy to ‘J’. I’m am a Early Years Professional and have worked in preschools, holiday clubs, special needs provisions and even a prison crèche. But now I’m focusing on being ‘Mummy’ and supporting J. I love reading, writing and listening to music (I also like to sing along but not everyone else enjoys that as much, haha).
Why I’m writing this blog…
I started to write this blog as a way to get the thoughts and muddles out of my head. Being a Mummy to a child with additional needs can be difficult emotionally as well as in more everyday ways. I guess I really just wanted to let others in our situations know that they aren’t alone. If this blog can help keep others a) sane b) informed c) give them ideas or advice then I’m happy and feel I’ve done my ‘job’.
J (who I keep anonomised as much as possible for his own privacy) turned 2 in December. He loves cars, trains…lets make this short…anything with wheels and can move. He loves doors and insists any open door must be shut and by him. J also loves buttons but isn’t happy with toys they have to be Mummy or Daddy’s phone or tablet! J was/is an atopic baby, meaning he has allergy, eczema and asthma which is all linked and combined. If one flares up so do the others…its joyful!
J is Autistic. He has Autism and as part of that he has sensory issues and social communication disorders. J was diagnosed in October.
Bit of history
So, J was developing as any ‘typical’ baby until he turned 9m. Then he just stopped and regressed. He stopped babbling, stopped using his few words (mama, dada, hiya, ta), wouldn’t point or wave or clap. We waited to see if he would ‘reset’ but it didn’t happen so by age 1 I got in contact with our Health Visitor and started with ‘at home assessments’. By 18m the HV decided that it was time to get further advice and soon after we started our journey with our wonderful Speech and Language Therapist and were given the diagnosis ‘Expressive Language Disorder’.
We were shortly referred to the Paediatrician to find out what the underlying cause of J’s issues. In June 2017 J completed his multi-disciplinary assessments and was diagnosed with Social Communication Disorder. This isn’t the end of our journey as we he continued to be assessed and supported. In October 2017 J was diagnosed with Autism.
So now we continue speech therapy, play skills with the specialist Nursery Nurse and awaiting occupational therapy AND have now built more links with a specialist health visitor who will be supporting us.